I had my consult with the specialist today, Dr. Y at Wake Forest Baptist Hospital. Despite the rainy weather, the two hour drive there, and two hour drive home, and the terrible brain fog it was a good day.
I enjoyed meeting Dr. Y and his resident. Sadly, I don’t remember the resident’s name, but he was pretty awesome. Dr. Y seems very knowledgeable about endometriosis. He seems more of a ‘Professor-type’ than your typical MD, but enjoyed that about him.
From this appointment we’re going to start a 6 week protocol of an aromatase inhibitor (Letrozole) with progesterone (norethindrone acetate) (and extra calcium supplements), before further discussing surgery. He doesn’t want to jump right into surgery because of my age, and because I haven’t had any prior abdominal surgeries- so he doesn’t want to start excising things and cause any problems that could possibly be avoided, especially since I haven’t had children yet and do want them in the future so don’t want to risk compromising my fertility in any way. Plus, given that possible clotting disorder in my family, its always best to keep surgery as a last option.
I was happy to hear he didn’t want to do depo or lupron. I refuse to do either of those because of the possible side-effects, and inability to quickly stop taking them if they make my ocular migraines worse. Plus, they generally aren’t effective- which Dr. Y completely agrees with.
I go back on June 9th to report how the drug protocol is working, and do an ultrasound and pelvic exam if surgery is still on the table. Hopefully during that 6 week period I’ll get some pain relief from the drug protocol and can avoid surgery all together (at least for now).
All and all, a very positive day.